Friday, 28 April 2017

Raise awareness of IBD this National Superhero Day!

It's National Superhero Day!

We know you're IBDSuperHeroes EVERY DAY, but if you're feeling that extra bit superheroey today, grab your cape & let's raise some IBD Awareness!


Post your awareness posts & images on our wall, publicly making sure you use the #IBDSuperHeroes hashtag on Facebook, Twitter, Instagram & Google+, or tag the Facebook page, & we'll share your posts!

If you have a spare £1.. or £10, and you'd like every penny of that to go to research to CURE IBD, you can make a donation!

Text CCSH90 £(amount) to 70070 OR donate online.


#IBDSuperHeroes – fundraising to find a CURE for Crohn’s and Colitis.
Money raised by #IBDSuperHeroes is solely invested in to finding a cure for Inflammatory Bowel Disease. That is 100% of your donations to medical research!





Thursday, 6 April 2017

Vitamin B12 deficiency | Definition

Vitamin B12 deficiency is quite common in IBD patients because B12 is absorbed at the end of the small intestine.

People with Crohn’s disease in this area may not be able to absorb B12 properly. People who have had surgery to remove the stomach or part of the small intestine which includes the end of the small intestine may also not be able to absorb vitamin B12.

Vitamin B12 helps to keep the nervous system healthy and is needed to make new cells in the body. 

Common symptoms of a vitamin B12 deficiency include:
Tiredness
Lethargy
Feeling faint
Breathlessness

Less common symptoms include:
Headaches
Heart palpitations
Altered taste
Loss of appetite
Ringing in the ears (tinnitus)
Looking pale

Sore mouth and tongue



Ileostomy | Definition

A ileostomy requires a surgical operation in which the cut end of the small intestine is brought through the abdominal wall to create an opening called a stoma. Digestive waste is then collected in a bag which is fitted over this opening and attached to the skin. It may be possible to reverse this, but this will be dependent on the disease and the person’s history.

A ileostomy is usually on the left side of the stomach. A colostomy is when it is the colon (large intestine) and not the small intestine, and this is usually on the right side of the stomach.





Colostomy | Definition

A colostomy requires a surgical operation in which the cut end of the colon (large intestine) is brought through the abdominal wall to create an opening called a stoma. Digestive waste is then collected in a bag which is fitted over this opening and attached to the skin. It may be possible to reverse this, but this will be dependent on the disease and the person’s history.

A colostomy is usually on the right side of the stomach. It is called a colostomy because it is the colon that is bought through the abdominal wall. An Ileostomy is when it is the small intestine and not the colon, and this is usually on the left side of the stomach.





Malnutrition | Definition

Malnutrition is a serious condition that usually occurs when a person’s diet doesn't contain the right amount of nutrients.

A person with Inflammatory Bowel Disease may have to limit their diet due to disease activity and some find that after surgery, their are certain foods they have to avoid forever. 

Some sufferers may suffer malnutrition due to malabsorption.
  

Malabsorption | Definition

Malabsorption means that the intestine fails to fully absorb the nutrients in food. This is sometimes caused by scarring / lesions from disease activity but can also be due to having part of the intestine surgically removed. Malabsorption may result in malnutrition
















Sunday, 2 April 2017

Setting up your own charity car wash

This page has been setup for those within the #IBDSuperHeroes group that expressed an interest (and anyone else interested) in organising a charity car wash to raise money to fund research in to curing Crohn's and Colitis.

Cure Crohn's & Colitis invest 100% of donations in to medical research to ultimately find a cure for Crohn's Disease and Ulcerative Colitis. Everyone that works with, and for Cure Crohn's & Colitis is voluntary so no admin fees or staff wages are taken from donations.

Don’t forget to click 'going' on the event page so you don’t miss any updates!

Arranging your car wash:
Initially we thought about aiming to get everyone to arrange their own car wash on the same day but we're aware that it's unlikely that would be possible, so instead we have chosen the month of JULY (hopefully the majority will be able to work with this).

The easiest method would obviously be to contact a local car wash to see if you can use their already equipped venue. You may need to enquire which day they are usually less busy (as you may be able to pull in more people) OR when they're busiest (if they're willing to share their already ripe custom for a good cause). Using a car wash should mean that you also have an easily accessible toilet, but it may be worth mentioning to them that you will need this. 

You may need to offer to provide cleaning materials yourself, although they will likely have a supplier that they buy cheap from in bulk so they may be willing to sell you these at trade price, ensuring their usual customers are still getting the products they're accustomed to.

We can provide you with an endorsement letter which introduces Cure Crohn's & Colitis, #IBDSuperHeroes and is on Cure Crohns & Colitis headed paper. This also includes the registered charity number and proves your intent to raise money for the charity, as well as their knowledge of the charity car wash events on their behalf. If you would like an endorsement letter, just send an email to ibdsuperheroes@gmail.com with the subject CAR WASH ENDORSEMENT LETTER.

Rally the troops! Gather as many of your friends and family as you can to help you! You could post in the group and the event page with your location and see if any other IBDers near you would like to get involved!
Supplies you will need: 
  • Liquid Soap
  • Buckets (for washing and collecting money)
  • Brushes
  • Sponges
  • Towels / Chamois / Leathers
  • Hoses with spray nozzles
  • Signs
Bare in mind, as mentioned above that the car wash you use will obviously have all of these already that they may be willing to supply for free or sell to you.
OR, you could request donations in the #IBDSuperHeroes group. This will allow other people to help who would not otherwise be able to participate. (And your event makes more profit!). If you do need to buy supplies, local £1 shops are great places to start or your local supermarket. Check out the below links for some ideas.

JustGiving page and sponsor forms:
Friends and family may want to donate for your efforts, so the images below show you how to create your own JustGiving page, and also how to link that to the #IBDSuperHeroes team page.


When you have set up your pages, post them in the event page and we can share them on the Facebook page, and your friends and family should see your posts too as this event has been created as a 'Public event'.

You can also upload money raised on the day to your JustGiving page.

If you would like sponsor forms to print, we can send them to you. Just send us an email to ibdsuperheroes@gmail.com with the subject CAR WASH SPONSOR FORM REQUEST.

Promoting your car wash:
We have posters ready to add your event details to so that you can promote your event locally and online. 
To request a poster send a request to ibdsuperheroes@gmail.com with the subject CAR WASH POSTER REQUEST. Don't forget to include the address, date and car wash price (Look at local prices and consider charging £1 less).

Create your own public event page on Facebook with the details of your car wash and invite as many friends and family that you can. You can post the link to YOUR event in the #IBDSuperHeroes event page and on the Facebook page wall. We will then promote this for you too. 

Contact local Facebook pages and ask if they can share it for you, add hashtags for local events on Twitter and ask them to share it, add it to any free event listings for your local area and post in local groups.